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Sunday, 21 April 2013

Interview with Toby Freeman from the Robin Cancer Trust


Recently I got in touch with The Robin Cancer Trust  to offer my support.  The Freeman family created the trust after the death of their son and brother Robin, due to germ cell cancer.  When my friend Anne told me about this cause, I felt compelled to get in touch as a germ cell cancer survivor myself.  Please see below an interview with Toby, Robin's brother.  Toby is right - there isn't much information available about germ cell cancer, so please do all you can to spread the word about this great charity.

1. Please tell us about your brother Robin.

I know people say this a lot about people who have passed away, but Rob really was such a nice guy. He was model handsome, in great shape and to round it all off was the funniest guy in the room. He had every reason to be arrogant and cocky and yet he was the most modest, down-to-earth guy who just wanted to settle-down with a solid career and start a family. They say only the good die young and I don't think you'd meet anyone who knew Rob who would say otherwise. 

Rob worked for Dad as a junior project worker and loved it. He was working full-time with University one-day a week working towards getting his degree. He played football with me on Sundays and had earned himself the nickname Robdog within weeks of playing, just because he showed how good he was (he never stopped running!). He also loved playing the drums, something he enjoyed with my other brother Adam as they both played an instrument. Some of my happiest memories is spending three summers at Reading Music Festival with my brothers enjoying our favourite bands as luckily we all enjoy the same type of music.



2.  Why did you and your family create the Robin Cancer Trust?

After Rob passed away we all sat down at the table, looked at each other and said ‘Something good has to come from this'.  One thing we noticed very quickly after Rob's diagnosis was the fact that there was very little information available, especially in one place on the internet, regarding Germ Cell Cancer. We didn't want another family to go through what we did without the facts so we decided to become that hub of information. It wasn't a decision we made lightly, we knew that this would be a life-long commitment, but we just thought if we could save just one life through raising awareness then it would be worth it.



3.  How can readers get involved with the Robin Cancer Trust?

The Robin Cancer Trust has been set up for one goal: to raise awareness of Germ Cell Cancers in 16-35 year olds. The easiest way to help us do this is by making yourself aware of the signs & symptoms and helping us spread the word.  We live in an age when information is freely available to us, so the easiest thing to do is visit our website, learn the facts and then tell your friends and families.  If you’re a guy, make sure you do a Testicular Self-Examination once a month.  If you're a girl make sure you know the Signs & Symptoms and know your body so you can tell when it doesn't feel right. Knowledge truly is power in the fight against cancer.  If you're well equipped then you stand the best chance of catching it early and getting a better diagnosis.

Just sharing a link on Facebook or Re-Tweeting on Twitter could give your friends the reminder they need to check themselves, or learn the vital information. It's not always about giving money; come down to an event and get involved if you're interested in what we're doing! If you're a survivor or have been affected by GCC then get in touch and we'll help you spread your story so that others can learn from it. We're aiming to raise awareness of the facts and get people talking about all Germ Cell Cancers.  If we do that, then we can make a difference.


Photos courtesy of Toby Freeman
www.therobincancertrust.org

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